Mathew Gregg: New News

I found out Monday that my Doctor has decided that my cancer stage is not 1B, it is more like 1S. This is because my blood work shows that my tumor markers are still elevated. This means that there could be more free-flowing cancer in my blood stream than he and his colleagues original suspected. I'm not surprised actually, something told me another pitfall was on the horizon. It sucks. I had to cancel plans to see fly to Tennessee and visit my grandmother over this sudden extension of treatment.

I'm still struggling with medicaid and the "people" at the disability office. I received 8 thick envelopes from Disability determinations to fill out and return. It's just ridiculous. They are barely treating me as it is and my medical bills are over 10,000 now. My mother had to wait for medicaid before she could even start chemotherapy and was told by her doctor that because of the untimely manner in which Medicaid acts, he might not be able to administer the treatment in time. How sick is that?

I feel a certain way this morning, it's 5:30AM. I have been up since around 4AM. Cliff woke up super early to go into work to set up some things before the store opens and I couldn't fall back to sleep. Just thinking about how I can't wait for this to be over and I hope and pray it doesn't come back ever. I don't want to end up like one of those people bound to a chair, jobless, sick, connected to some implanted device perminently. I apologize if that is too harsh for the reader but it isn't a pretty picture to paint. I could be doing a lot more if treatments and check-ups were not constantly consuming my time, even at home I have to think about appointments and worries which takes time away from productivity as well.

I did have some fun with Cliff and Boh at the beach over the weekend. Then I stayed at Boh's to get to and from chemo Monday-Wednesday. We had fun just relaxing, even at chemo he waits with me and the time goes by so much faster. His mom's car inconveniently broke down over the weekend so getting to and from was an ordeal these past few days but somehow he managed to find rides and I was there in time everyday.

So in the days I stayed at Boh's house he played a song on his piano that I found really captivating and beautiful. I assumed it was from the book in front of him but it turned out to be written by him, for me. It had words to it and everything. Quite amazing and beautiful. The song is below. Very few things geven to me have caused me to become teary eyed, but this one certainly did. The rest of his album is great too, I encourage you to listen.
The song is below...

There are some pictures below from last week when Boh and I shaved our heads, and some more recent pictures. So much I wasn't able to blog about, so this blog bounces around a bit. We also baked Halloween cupcakes for the people I work with as a thank you for donating and trying to help me. Boh's birthday was on the 18th and although he was at chemo with me most of the day, I bought him gifts and we had Curry and Birthday Blast ice cream that evening. I bought him an omlete pan that encloses making it super easy to cook. Also got him a few little things but the main gift was a picture book I created about our friendship.